Yeah, there are several versions of holoprosencephaly...Alobar, Semi-Lobar and Lobar. There's a fourth condition that's grouped among the holoprosencephaly syndromes, but it's different enough that it's thought by many scientists to actually be a separate condition. Among the three above, Alobar is the worst...That's the one where the babies look like cyclops and the forebrain doesn't split at all. Most all of those babies are either miscarried or die soon after birth. The least serious version is lobar, where there the brain does split into hemispheres, but they aren't quite complete. The child might look almost normal in this case. And then in between the two, you have semi-lobar. Even though alobar is the most serious in the sense that that is incompatible with life and causes the most extreme deformities, in some ways semi-lobar can be thought of as worse because with alobar, the kid is not suffering and while the parents might suffer emotionally because of the loss of a child and the gut punch that comes with the shock of giving birth to something so ghastly, they are free to have other, hopefully healthy children.
With semi lobar holoprosencephaly, you've got a child that thanks to the "miracles" of modern science can live for years, but will need constant, round the clock care. They wont be as deformed as the cyclops babies, but their appearance is still fucked. Cognitively, they're maybe a little bit above a total vegetable...maybe. They will have intractable seizures and will be able to do nothing for themselves. They'll never walk talk, feed themselves or use the toilet by themselves. This is the condition that the kid in the previous post has. He looks like he could be a sibling of Matthew Nel, who also has the condition and has been mentioned in this thread before. Mathew's parent's keep a blog about him, although they haven't posted much in the past year.
Their last post was in July, when they mentioned being featured in a music video. I'll link it below. The video
exploits um... lovingly showcases Matthew and other members of nature's special little miracle club.
The last actual update on his condition was in May. Apparently, he'd come closes to nearly dying several times, but "fortunately" medics and doctors managed to save him. There haven't been any announcements about his death, so he is probably still hanging on, or rather being forced to remain alive despite his best efforts to die. I believe the blog has been posted in this thread before also, but I'll post another link to it again so you dont have to go back searching through old messages to find it.
Song Matthew and his parents were in :
https://youtu.be/64xwEiSEE9M
Blog about Matthew kept by his parents:
https://matthewmanuelnel.wordpress.com/blog-posts