🤝 Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

If the fetus is born with a condition that's "incompatible with life" (unlikely that it wouldn't be found on a scan, but we're being hypothetical here) then can you deny all intervention since it's essentially been diagnosed with a fatal condition? And how far does that intervention go? No feeding/IV fluids?
It's by state or country. A condition that bad though is going to be picked up for the most part by ultrasounds and amnio test. Some doctors would be like compassionate measures only and if parents sign a DNR (pain meds, maybe a bit of oxygen). Then they let nature take its course. More religious states/countries may not have this compassion though.

Some countries allow euthanasia as well.
 
This has probably been answered before in this thread, but maybe an updated answer would be useful?

Say you have all of your prenatal exams, scans, genetic testing/amnio/CVS, etc... basically you do everything you can to determine that you won't have a potato before you give birth, as well as a birth in a damn nice hospital with a NICU or whatever. You did everything recommended for a healthy pregnancy.

And then by some random happenstance (and if anyone has statistics of what I hope is a very rare occurrence please share) you still end up with a potato...

What are your options at that point?
1616665423535.png
 
This has probably been answered before in this thread, but maybe an updated answer would be useful?

Say you have all of your prenatal exams, scans, genetic testing/amnio/CVS, etc... basically you do everything you can to determine that you won't have a potato before you give birth, as well as a birth in a damn nice hospital with a NICU or whatever. You did everything recommended for a healthy pregnancy.

And then by some random happenstance (and if anyone has statistics of what I hope is a very rare occurrence please share) you still end up with a potato...

What are your options at that point?

Most parents just accept their lot and get on with raising a disabled child. Because although it’s not a choice they would have made for themselves, they still desperately love their child and want to take care of them, just as they would if they’d been born completely healthy.

Hypoxic brain injuries due to botched births (in hospital, that is) still happen more often than you might think. The UK NHS pays out an astonishing amount of money in compensation each year to the families of children who were left needing lifelong care due to medical negligence.

Here’s an example:

Not many people relinquish their disabled babies, although it does happen. I remember this woman (Julia Hollander, sister of the actor Tom) whose daughter was badly brain damaged after a placental abruption. She decided she couldn’t handle raising a profoundly disabled child and she was taken into foster care. She even wrote a book about it.


Ultimately, having kids doesn’t come with a cast iron guarantee that they’ll be healthy and you sort of have to make peace with that before you roll the dice. Or they could be like Eva Love and be a totally healthy, normal kid until a bizarre accident leaves them with a massive brain injury.
 
Most parents just accept their lot and get on with raising a disabled child. Because although it’s not a choice they would have made for themselves, they still desperately love their child and want to take care of them, just as they would if they’d been born completely healthy.

Hypoxic brain injuries due to botched births (in hospital, that is) still happen more often than you might think. The UK NHS pays out an astonishing amount of money in compensation each year to the families of children who were left needing lifelong care due to medical negligence.

Here’s an example:

Not many people relinquish their disabled babies, although it does happen. I remember this woman (Julia Hollander, sister of the actor Tom) whose daughter was badly brain damaged after a placental abruption. She decided she couldn’t handle raising a profoundly disabled child and she was taken into foster care. She even wrote a book about it.


Ultimately, having kids doesn’t come with a cast iron guarantee that they’ll be healthy and you sort of have to make peace with that before you roll the dice. Or they could be like Eva Love and be a totally healthy, normal kid until a bizarre accident leaves them with a massive brain injury.
Can we fucking clone a million Tanias? What an extraordinary human. I’m always humbled by people with such genuine empathy, care and love.

Children, like anything in life, are a crap shoot. There are no guarantees, but you don’t get much out of life if you aren’t willing to take some risks occasionally.
 
They apparently realize it's fatal, but they're writing as if the believe they're going to have a baby with no nose and some other facial anomalies, but that it will still look like a baby. I think they believe their kid might resemble a cute little Voldemort, with at worst, a cleft palate and eyes that are a little too close together. I doubt they've done their own research and have found pictures of what a baby or fetus with the Alobar form of HPE actually looks like.
While most babies with alobar HPE come out with lethal deformities, an unlucky few manage to come out just normal enough to avoid croaking right away. Of course, they're still complete potatoes for the entirety of their short lives. The late Pearl Joy Brown is one example.

On the other end of the spectrum, there's this guy who has lobar HPE. While he does have some issues with speech and movement, he's found something he's good at (rock-climbing) and appears to be living a fulfilling life, and the fact that potato baby lovers insist that his case is equivalent to their spuds makes me MATI.
 
Can we fucking clone a million Tanias? What an extraordinary human. I’m always humbled by people with such genuine empathy, care and love.

Children, like anything in life, are a crap shoot. There are no guarantees, but you don’t get much out of life if you aren’t willing to take some risks occasionally.

I used to read her blog. Imogen (the baby she essentially adopted) died at the end of 2015.
 
She sounds disgustingly enthusiastic about having a horribly malformed child. It makes my skin crawl. A normal person would be heartbroken to learn that their child will never become an adult. Yet there are people who seem downright giddy to pump out a tard baby.
I tend to assume that people who behave like that are the kind of attention-whoring assclowns who see all the praise and"support" showered on moms of fucked-up potato babies and are excited to be getting in on that action, because it means people will be kissing their asses and telling them how strong and brave they are. As a bonus, they won't have to deal with all the stresses of raising an actual child, because the baby will never be able to talk back or throw a tantrum or generally be anything other than a prop for them to use in their ploys for attention.
 
This has probably been answered before in this thread, but maybe an updated answer would be useful?

Say you have all of your prenatal exams, scans, genetic testing/amnio/CVS, etc... basically you do everything you can to determine that you won't have a potato before you give birth, as well as a birth in a damn nice hospital with a NICU or whatever. You did everything recommended for a healthy pregnancy.

And then by some random happenstance (and if anyone has statistics of what I hope is a very rare occurrence please share) you still end up with a potato...

What are your options at that point?
Actual nuts and bolts? If your kid is obviously impaired enough to go straight to the NICU, the hospital starts the paperwork for you, to get Medicaid started, get you set up for home health and and any home medical equipment you might need before you go home, they get the ball rolling before you ever leave the hospital.

The weird limbo is to be just healthy enough to get sent home from the hospital, and then start to have things show up, because the first several months of their life, what do you expect from a baby? Sleeping and eating, if they do that, they're "meeting their milestones". But if you start to see something then, say seizures, and THEN have to start looking into stuff, it's a whole new set of hurdles. If you don't automatically financially quality for Medicaid, then you get on the disability waiver lists, which waive the income of the parents to just look at the disability of the kid, and are usually years long.
 
While most babies with alobar HPE come out with lethal deformities, an unlucky few manage to come out just normal enough to avoid croaking right away. Of course, they're still complete potatoes for the entirety of their short lives. The late Pearl Joy Brown is one example.

On the other end of the spectrum, there's this guy who has lobar HPE. While he does have some issues with speech and movement, he's found something he's good at (rock-climbing) and appears to be living a fulfilling life, and the fact that potato baby lovers insist that his case is equivalent to their spuds makes me MATI.
He has an associated genetic disorder, and LOBAR holoprosencephaly is definitely not the same as the alobar variety. It's only a partial nondivision of the brain. Go Keith!
 
This woman really thinks that her kid is going to survive and be okay.
What she wants is for some people to tell her “they told me my kid was going to be XXX and die/severely disabled but was born totally healthy!!” They usually find a few women who will too. They are either totally lying or were to dim to understand what the doctor was actually telling them about the fetus.

(This was particularly true years ago with prenatal blood tests that basically just gave risk ratios/odds of a particular chromosome problem occurring. So a doctor would tell a woman her fetus had an increased risk (like one in forty instead of one in 50,000) chance of having DS or some other trisomy defect. They turned this into “they told me my baby was going to have Xxx and die, but was born totally fine!” It’s more common now to hear these stories repeated as from “my mom” or my mom’s friend. The prenatal DNA tests they have now are ridiculously accurate (no more risk ratios) and ultrasounds for stuff like this show very clearly what’s gone very wrong. Undeveloped organs, growth weeks behind, brain development, etc.. aren’t things they make mistakes about.

She probably wants people tell her prayer has given some people miracle cures in these situations and resulted in healthy or viable births. I mean it’s a bleak as fuck prognosis so she’s wanting to hear anything besides you will give birth only for your baby to suffer and die. I figure extreme religious belief can provide a measure of denial and hope that gets them through this, but unfortunately it also results in undue suffering and futile life extension measures too in some cases.


While most babies with alobar HPE come out with lethal deformities, an unlucky few manage to come out just normal enough to avoid croaking right away. Of course, they're still complete potatoes for the entirety of their short lives. The late Pearl Joy Brown is one example.

On the other end of the spectrum, there's this guy who has lobar HPE. While he does have some issues with speech and movement, he's found something he's good at (rock-climbing) and appears to be living a fulfilling life, and the fact that potato baby lovers insist that his case is equivalent to their spuds makes me MATI.
Good for that guy finding a challenging physical activity and excelling at it. They mentioned a blind climber too and it occurred to me being blind might be an advantage in rock climbing because your eyes can be a distraction and looking around/down can increase stress when climbing. You’d be a very focused climber only paying attention to the most important aspects - grip security, body stability and feel - but I guess you’d have to memorize climbing route or risk getting stuck.
Of course, I then had to wonder about the field of “adaptive climbing” for the disabled because it seems there is no limit to the disability one might have or equipment that can be used. I imagined a Hartley potato kid just being hauled up in a net via pulley system and Gwen declaring her a sassychampion climber. Sort of how they have had paraplegics “climbing” Mt Everest which amounts to riding a sled mostly pulled and carried by others just so some new bizarre “1st” can be claimed for some PR stunt. (Paraplegics can use arm strength to do real climbing, but Mt Everest is not a mountain for that type of climbing.
 
The woman pregnant with the FUBAR cyclops fetus posted another blog entry
Ver archivo adjunto 2031359
Now I'm not a believer, but I have to wonder what amazing part of God is reflected in a hideously deformed, doomed fetus
"Typically, the nose is either missing or replaced with a non-functioning nose in the form of a proboscis. Such a proboscis generally appears above the central eye, or on the back." On...the...back...did nature just go fuck it lets just put it anywhere we already fucked its face up!

"SHH (Sonic Hedgehog Gene Regulator) is involved in the separation of the single eye field into two bilateral fields."

"102 infants with cyclopia, 96 with sirenomelia, and one with both conditions were identified among nearly 101 million births."
Sirenomelia if you do not know is this:
1616790521729.png

They tend to have short bowel syndrome meaning there is no exits for what goes in and they tend to have no external reproductive orgrans.

When Sironemlia and Cyclopia form they make this monstrosity:
1616791118151.png

"Cyclopia is obligatorily associated with holoprosencephaly (and therefore often with microcephaly) because it originates in deficient
lateralisation of the early rudiment of the brain." In short, they are the ultimate potato.

In short, Cyclopia brain is more neural tube then brain and does not have any of the capacity to make life happen. The maximum recorded lifespan of a child born with cyclopia was one day.
 
"Typically, the nose is either missing or replaced with a non-functioning nose in the form of a proboscis. Such a proboscis generally appears above the central eye, or on the back." On...the...back...did nature just go fuck it lets just put it anywhere we already fucked its face up!

"SHH (Sonic Hedgehog Gene Regulator) is involved in the separation of the single eye field into two bilateral fields."

"102 infants with cyclopia, 96 with sirenomelia, and one with both conditions were identified among nearly 101 million births."
Sirenomelia if you do not know is this:

They tend to have short bowel syndrome meaning there is no exits for what goes in and they tend to have no external reproductive orgrans.

When Sironemlia and Cyclopia form they make this monstrosity:

"Cyclopia is obligatorily associated with holoprosencephaly (and therefore often with microcephaly) because it originates in deficient
lateralisation of the early rudiment of the brain." In short, they are the ultimate potato.

In short, Cyclopia brain is more neural tube then brain and does not have any of the capacity to make life happen. The maximum recorded lifespan of a child born with cyclopia was one day.
At least a cyclops mermaid is a badass idea for a custom Monster High doll (if theres not already a canon character like that). A real baby like that, not so much.

Wasn't there one girl with sirenomelia that actually survived to 11 or so? I remember her making the rounds on daytime talk shows back when. From what I remember she was mentally normal and seemed like a sweet, intelligent kid (like that other terminally ill girl posted a few pages back) :(
 
Atrás
Top Abajo