🤝 Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[GenociderSyo]

So since Lunas mother has gone mia and her father privatized I've been bored. SOOOOO I've gone through her followers to see what goodies I could find.

The VERY FIRST ONE is a mother that uses her EXTREMELY disabled child (Thanatrophic dwarfism and skeletal dysplasia dwarfism) to shill MLM and influencer shit.

Thanatrophic Dwarfism is the most extreme version of dwarfism a person can have. They have the appearance they do because the long bones do not form properly or may be completely absent. The appendages are EXTREMELY short. This used to be considered 100% fatal, but now with genetic testing it is known before birth and planning can occur to secure the airway since they all have issues with their breathing due to small chest/small airway. 80% to 100% of casees have an iq less then 20. They are conscious beings but most will never leave the intellecttual age of a young toddler. 0 to 20% are only mildly retarded. So regardless this child will at least be somewhat cognicant that she is different and very limited.

You may ask how is this woman a lolcow. Well EVERY morning she posts using her daughter to attempt to get downliners for her MLM with Mary Kay. To sell "cheap" water bottles:

And to shill random sponsors:

This is Liquid IV and is $140 worth of drink powder.

 

[Jacinthe]

Holy shit, that baby looks like an extremely brachycephalic pug. Especially in the image with her on her belly in the water. Poor kid.

 

[Itspinklava]

These people popped up in my recommendations. I searched the thread and haven’t seen them posted. Caliyah was born with Pfeiffer syndrome, and according to the birth post, they didn’t know until 37 weeks. The parents (especially the dad) are influencers and have brands tagged in every photo.

Rome was even on Good Morning America because of his gimmick of writing letters on social media to his daughter.

I can’t stand open letters people write on social media to babies and dead people that will never read them. It seems like writing the letter on a piece of paper and saving them to give to the child when they could appreciate them would be more heartfelt, but that doesn’t get you on GMA.
I don’t know a lot about Pfeiffer syndrome, and it isn’t specified which type Caliyah has, so I can’t tell if she’s an actual potato, but there is a post where Rome mentions that she’s deaf.

 

[GenociderSyo]

I don’t know a lot about Pfeiffer syndrome, and it isn’t specified which type Caliyah has, so I can’t tell if she’s an actual potato, but there is a post where Rome mentions that she’s deaf.

Pfieffer syndrome is categorized by premature fusion of the skull, protuding eyes, and conductive hearing loss. Considering she doesn't appear to have deformities to the hands and feet she's probly the mildest type 1. Though her head and respiratory issues may be indicitive of type 3. If it is type 1 theres no effect on intelligence. If its type 2 the effect is a spectrum either mildly to severely retarded. Type 3 tend to be moderarely to severely retarded. Also, of note the large lips are not part of the disorder.

Severe disabilities/severe mental illness has been my focus in school/work so if anyone ever has questions about them your quite welcome to ask. The rarer they are the more I enjoyed learning about them. (Not many people probably read NORD for fun)

 

[Bubblez McGee]

So since Lunas mother has gone mia and her father privatized I've been bored. SOOOOO I've gone through her followers to see what goodies I could find.

The VERY FIRST ONE is a mother that uses her EXTREMELY disabled child (Thanatrophic dwarfism and skeletal dysplasia dwarfism) to shill MLM and influencer shit.

Thanatrophic Dwarfism is the most extreme version of dwarfism a person can have. They have the appearance they do because the long bones do not form properly or may be completely absent. The appendages are EXTREMELY short. This used to be considered 100% fatal, but now with genetic testing it is known before birth and planning can occur to secure the airway since they all have issues with their breathing due to small chest/small airway. 80% to 100% of casees have an iq less then 20. They are conscious beings but most will never leave the intellecttual age of a young toddler. 0 to 20% are only mildly retarded. So regardless this child will at least be somewhat cognicant that she is different and very limited.

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156267451_460260738352817_559844960832409018_n.mp4

You may ask how is this woman a lolcow. Well EVERY morning she posts using her daughter to attempt to get downliners for her MLM with Mary Kay. To sell "cheap" water bottles:
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And to shill random sponsors:
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This is Liquid IV and is $140 worth of drink powder.

It always fascinates me how people with certain conditions or syndromes can resemble one another so closely that they look more related to each other than to their actual relatives. This girl looks a lot like she could be the sister of Samuel Mann, another kid with Thanatophoric dwarfism, who was discussed in this thread a few years ago when Chris Ulmer AKA Malibu Ken, featured Samuel and his parents in a video on Chris's youtube channel.

For those who didn't see the video with Samuel and his parents before, here's a link :

The Miracle Mann (Thanatophoric Dysplasia Dwarfism)

Samuel was born with a rare form of dwarfism and not expected to live more than a few months.At 11 years old Samuel has defied all odds. He is 25 pounds, 26 ...

www.youtube.com

 

[GenociderSyo]

It always fascinates me how people with certain conditions or syndromes can resemble one another so closely that they look more related to each other than to their actual relatives.

Yep! There are two other instagrams I've seen with the disorder:

 

[JackDonaghysSecretLover]

These people popped up in my recommendations. I searched the thread and haven’t seen them posted. Caliyah was born with Pfeiffer syndrome, and according to the birth post, they didn’t know until 37 weeks. The parents (especially the dad) are influencers and have brands tagged in every photo.
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Rome was even on Good Morning America because of his gimmick of writing letters on social media to his daughter.
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I can’t stand open letters people write on social media to babies and dead people that will never read them. It seems like writing the letter on a piece of paper and saving them to give to the child when they could appreciate them would be more heartfelt, but that doesn’t get you on GMA.
I don’t know a lot about Pfeiffer syndrome, and it isn’t specified which type Caliyah has, so I can’t tell if she’s an actual potato, but there is a post where Rome mentions that she’s deaf.

this actually scared me, wtf

 

[Android raptor]

Pfieffer syndrome is categorized by premature fusion of the skull, protuding eyes, and conductive hearing loss. Considering she doesn't appear to have deformities to the hands and feet she's probly the mildest type 1. Though her head and respiratory issues may be indicitive of type 3. If it is type 1 theres no effect on intelligence. If its type 2 the effect is a spectrum either mildly to severely retarded. Type 3 tend to be moderarely to severely retarded. Also, of note the large lips are not part of the disorder.
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Severe disabilities/severe mental illness has been my focus in school/work so if anyone ever has questions about them your quite welcome to ask. The rarer they are the more I enjoyed learning about them. (Not many people probably read NORD for fun)

What's the prognosis? Like are these kids able to have at least some quality of life? I know even with severe mental retardation someone can still have a good life with proper support, but having a bunch of physical health issues complicates that.

Prayersforpaisley has been posted ITT before, not surprised she's an mlm shill on top of everything else. I guess given how many fundie women become MLM huns it makes sense that would include some tard baby moms.

 

[John Merston]

What's the prognosis? Like are these kids able to have at least some quality of life? I know even with severe mental retardation someone can still have a good life with proper support, but having a bunch of physical health issues complicates that.

According to Wikipedia, Type 1 patients generally have a normal life span, while kids with Type 2 and Type 3 generally tend to die young.

 

[PinkDancingDogs]

It’s like the April Rose blog, only not fake. I feel bad for these people. It sounds like they have five kids already so this is going to be traumatizing af for them. Hopefully she will miscarry naturally and five children won’t be forced to hold and adore a brainless cyclops baby.

(There was a wild blog years ago where a woman faked a doomed holoprosencephaly baby pregnancy. Don’t ask me why she chose HPE. But Jesus answered her prayers and her reborn doll arrived perfectly with both eyes. I always thought she wanted to pull off the actual “miracle via prayer” that these cases sadly never get.)

Those reborn pics w/ the hat or whatever pulled down to obscure the lack of cyclops baby did give me a chuckle. Her level of commitment to the grift was impressive.

 

[GenociderSyo]

What's the prognosis? Like are these kids able to have at least some quality of life? I know even with severe mental retardation someone can still have a good life with proper support, but having a bunch of physical health issues complicates that.

As was said by poster who responded to you Type 1 has a normal life expectancy. Type 2 and 3 used to have very limited, but now with medical advances they live longer though not normal span. It all depends on the neurological issues they have Chiari malformation is common in these types as well as possible coprus callosal agenesis (missing mid brain - corpus callosum). Type 2 has a longer life expectancy then Type 3 and some have survived into adulthood since a majority of its issues are still cranial. Type 3 has systematic issues such as lung and kidney abnormalities.

 

[Android raptor]

As was said by poster who responded to you Type 1 has a normal life expectancy. Type 2 and 3 used to have very limited, but now with medical advances they live longer though not normal span. It all depends on the neurological issues they have Chiari malformation is common in these types as well as possible coprus callosal agenesis (missing mid brain - corpus callosum). Type 2 has a longer life expectancy then Type 3 and some have survived into adulthood since a majority of its issues are still cranial. Type 3 has systematic issues such as lung and kidney abnormalities.

Ok so basically as fucked as these kids look they can actually have some quality of life depending on how severe their physical issues are? It sounds like at the very least they aren't potatoes even if they have intellectual disabilities.

Either way parents shouldn't be exploiting them for social media clout.

 

[GenociderSyo]

Ok so basically as fucked as these kids look they can actually have some quality of life depending on how severe their physical issues are? It sounds like at the very least they aren't potatoes even if they have intellectual disabilities.

Either way parents shouldn't be exploiting them for social media clout.

Yep. There's a lot of disorders that will make you look horribly disfigured yet do nothing to your ability to have intelligence.

 

[Bubblez McGee]

Pfieffer syndrome is categorized by premature fusion of the skull, protuding eyes, and conductive hearing loss. Considering she doesn't appear to have deformities to the hands and feet she's probly the mildest type 1. Though her head and respiratory issues may be indicitive of type 3. If it is type 1 theres no effect on intelligence. If its type 2 the effect is a spectrum either mildly to severely retarded. Type 3 tend to be moderarely to severely retarded. Also, of note the large lips are not part of the disorder.
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Severe disabilities/severe mental illness has been my focus in school/work so if anyone ever has questions about them your quite welcome to ask. The rarer they are the more I enjoyed learning about them. (Not many people probably read NORD for fun)

I'm pretty sure I've mentioned it before a few years ago, but since there are a lot of new people here, I figure it's OK to talk about again, especially since it's pertinent to the topic: Prince's only child, Amiir, was born with Pfeifer Syndrome type 2 back in 1996. The doctors recommended a tracheotomy, but Prince and his wife at the time, Mayte wouldn't allow it and Amiir died 6 days after he was born. I dont know if he would have lived past infancy had he been given the procedure, or if at the time, his death was inevitable. I thought it was a 100 percent fatal condition back when I heard about it, but now I'm not sure what, if anything, the survival rate for type 2 was back in 96.

There were never any pictures taken of Amiir, at least none that were ever released to the public, but a few years ago Mayte wrote a book detailing her life with Prince where she talked about Amiir and described his eyes as looking startled and dry because he had no eyelids. He apparently had the cloverleaf skull shape indicative of the type 2 version of the syndrome. She also mentioned that doctors twice recommended prenatal genetic testing to see if there were any fetal abnormalities, but Prince refused to allow it, instead he went with prayer. I certainly wont judge Prince and Mayte for their decision not to prolong Amiir's life, especially when it seemed that it meant a life of misery , but I might be a bit judgmental of Prince for refusing to allow any genetic testing to see if there was a problem before the baby was born. Supposedly it was because he was afraid of risking a miscarriage, but I think that might have been an excuse and he just didn't want to believe anything could possibly wrong with his child that was supposed to be perfect. I posted a few links below for anyone who wants to read more.

Prince’s First Wife Tells the Story of Their Son Amiir’s Life and Death

Mayte Garcia's new memoir coincides with the one-year anniversary of Prince‘s accidental overdose.

www.vanityfair.com

The HEARTBREAKING Death Of Prince's Son That Led To His Divorce

Celebrity | Prince and Mayte Garcia went through heartache after the death of their son just 6 days after she gave birth.

talentrecap.com

 

[FluffyCat9000]

I'm pretty sure I've mentioned it before a few years ago, but since there are a lot of new people here, I figure it's OK to talk about again, especially since it's pertinent to the topic: Prince's only child, Amiir, was born with Pfeifer Syndrome type 2 back in 1996. The doctors recommended a tracheotomy, but Prince and his wife at the time, Mayte wouldn't allow it and Amiir died 6 days after he was born. I dont know if he would have lived past infancy had he been given the procedure, or if at the time, his death was inevitable. I thought it was a 100 percent fatal condition back when I heard about it, but now I'm not sure what, if anything, the survival rate for type 2 was back in 96.

There were never any pictures taken of Amiir, at least none that were ever released to the public, but a few years ago Mayte wrote a book detailing her life with Prince where she talked about Amiir and described his eyes as looking startled and dry because he had no eyelids. He apparently had the cloverleaf skull shape indicative of the type 2 version of the syndrome. She also mentioned that doctors twice recommended prenatal genetic testing to see if there were any fetal abnormalities, but Prince refused to allow it, instead he went with prayer. I certainly wont judge Prince and Mayte for their decision not to prolong Amiir's life, especially when it seemed that it meant a life of misery , but I might be a bit judgmental of Prince for refusing to allow any genetic testing to see if there was a problem before the baby was born. Supposedly it was because he was afraid of risking a miscarriage, but I think that might have been an excuse and he just didn't want to believe anything could possibly wrong with his child that was supposed to be perfect. I posted a few links below for anyone who wants to read more.

Prince’s First Wife Tells the Story of Their Son Amiir’s Life and Death

Mayte Garcia's new memoir coincides with the one-year anniversary of Prince‘s accidental overdose.

www.vanityfair.com

The HEARTBREAKING Death Of Prince's Son That Led To His Divorce

Celebrity | Prince and Mayte Garcia went through heartache after the death of their son just 6 days after she gave birth.

talentrecap.com

Prince became a Jehovah's Witness at some point and they don't believe in any medical intervention... Even blood transfusions are off the table for them because they believe in bodily integrity must be 100% to go to heaven. So getting a blood transfusion means someone else has broken their own body's temple and then breached your own temple by inserting their own blood.

By that logic I can see why a tracheostomy would be out of the question for them to allow. It would also explain why they refused genetic testing if the technique was an amniocentesis.

There are cases of children with treatable conditions Nearly dying at hospital by their parents witholding consent. Sometimes hospitals try to get a court order to overrule in favour of the child's wellbeing.

with something more serious like Pfeiffer's syndrome I can at least understand not wanting terribly invasive procedures, but the ones that refuse simple blood transfusions are so infuriating to me

 

[Miss Misery]

This has probably been answered before in this thread, but maybe an updated answer would be useful?

Say you have all of your prenatal exams, scans, genetic testing/amnio/CVS, etc... basically you do everything you can to determine that you won't have a potato before you give birth, as well as a birth in a damn nice hospital with a NICU or whatever. You did everything recommended for a healthy pregnancy.

And then by some random happenstance (and if anyone has statistics of what I hope is a very rare occurrence please share) you still end up with a potato...

What are your options at that point?

 

[GenociderSyo]

This has probably been answered before in this thread, but maybe an updated answer would be useful?

Say you have all of your prenatal exams, scans, genetic testing/amnio/CVS, etc... basically you do everything you can to determine that you won't have a potato before you give birth, as well as a birth in a damn nice hospital with a NICU or whatever. You did everything recommended for a healthy pregnancy.

And then by some random happenstance (and if anyone has statistics of what I hope is a very rare occurrence please share) you still end up with a potato...

What are your options at that point?

Raise it, give it up for adoption, some states have safe haven rules for those that just wish to abandon. A good amount of the children/adults I work with are wards of the state.

 

[booklover]

Prince became a Jehovah's Witness at some point and they don't believe in any medical intervention... Even blood transfusions are off the table for them because they believe in bodily integrity must be 100% to go to heaven. So getting a blood transfusion means someone else has broken their own body's temple and then breached your own temple by inserting their own blood.

By that logic I can see why a tracheostomy would be out of the question for them to allow. It would also explain why they refused genetic testing if the technique was an amniocentesis.

There are cases of children with treatable conditions Nearly dying at hospital by their parents witholding consent. Sometimes hospitals try to get a court order to overrule in favour of the child's wellbeing.

with something more serious like Pfeiffer's syndrome I can at least understand not wanting terribly invasive procedures, but the ones that refuse simple blood transfusions are so infuriating to me

Owning my disagree because most Jehovah's Witnesses will do any medical intervention they need, EXCEPT for blood transfusions. And that's not a hard-and-fast rule, because many of them will allow them for their minor children, or for themselves if they are unable to refuse them.

I don't think Prince converted to JW until after Amiir's birth.

 

[Fliddaroonie]

This has probably been answered before in this thread, but maybe an updated answer would be useful?

Say you have all of your prenatal exams, scans, genetic testing/amnio/CVS, etc... basically you do everything you can to determine that you won't have a potato before you give birth, as well as a birth in a damn nice hospital with a NICU or whatever. You did everything recommended for a healthy pregnancy.

And then by some random happenstance (and if anyone has statistics of what I hope is a very rare occurrence please share) you still end up with a potato...

What are your options at that point?

Dont give it that initial first feed.it wont get hungry and will die quietly.

My first preference would be to actually put it down but we're not allowed to.

I'm being entirely serious. The hippocratic oath is nothing to do with dragging out life, its about preventing harm. Sometimes death is the least harmful option.

 

[Miss Misery]

My first preference would be to actually put it down but we're not allowed to.

If the fetus is born with a condition that's "incompatible with life" (unlikely that it wouldn't be found on a scan, but we're being hypothetical here) then can you deny all intervention since it's essentially been diagnosed with a fatal condition? And how far does that intervention go? No feeding/IV fluids?

I confess the Terri Schiavo thing frustrated me so much that I know fuck-all about intervention/lack thereof, and right to die...