I hate to say this but Paisley's mother is the scum of the earth. So now Paisley may have seizures. Great, let's just add more to the not compatible with life pot. I hate how this woman preaches about God and purpose yet she won't acknowledge she's making her child suffer and there's nothing Christian about what she's doing. I'm not religious but I'd imagine if someone had real faith, they would have accepted "God's will" and let Paisley pass in peace and put an end to their child's suffering. Cannot stand that woman and her self-serving ignorant religious stance she uses for ass pats and followers. She's so desperate for attention too. Didn't she take Paisley's pictures and videos down because of hateful comments? Now she's back to posting about her, starting to show bits and pieces of her daughter. Of course, her comment section is carefully curated, as she doesn't allow any "hate" or "negativity," only ass pats to reassure her she's a great mother for keeping her ugly potato alive.
My suspicion is that she's had seizures since birth or close to it, and for whatever reason, her "mother" has decided to share about them now. The genetic mutation that she has means that the brain literally cannot form correctly. Her mother has not shared specifics that I'm aware of, but Paisley has major neuroanatomical differences that mean it would be exceptional for her
not to have intractable seizures.
My major problem with these particular parents, as with many of the other spud parents, is that Paisley did not - and indeed, cannot - consent to have her private medical information blasted all over the Internet. She's a human being, not a living episode of
General Hospital, and even if she will never understand that her information is "out there" it's still a gross (in every sense of that word) violation of her privacy. For many of these parents, I think their decision to put their severely disabled children all over the Internet betrays that deep down, they don't think of them as fully human or deserving of basic dignity, and that's disgusting.
Of course, there are ways to share about a child's condition in order to raise awareness and make happy memories, while still being respectful of that child as the agent of a separate life. There are a couple of accounts I follow on Instagram that share details about a child's devastating diagnosis in such a way that people feel able to ask questions and interact. Especially for younger people, I think that it's really important and healthy to be able to interact with severely disabled individuals and see them living their lives in their normal way, and it's actually a lovely legacy for a kid with a life-limiting condition to be remembered that way. The parents I have in mind are willing to answer just about any questions, but are careful to word their answers in a way that respects their children as actual people. On the other hand, you have parents like Paisley's or Gwen Hartley, who respond to even the most respectful inquiry with semi-coherent screeching about "inclusion" and "respect", but have no compunction about sharing the most intimate, undignified details. They're fine with indignity, as long as they're the ones perpetuating it.