- Registrado
- 24 de Feb, 2019
It is not as niche as it used to be, there are even certifications to learn to be a "deafblind intervener."
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🤝 Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention
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🚨 On-and-off DDoS attacks. (July 25th: On-going connection issues.)
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- 2 de Feb, 2021
Unironically, being a wheelchair user in space shouldn't actually be a big problem. You're strapped in while the rocket is blasting up, and then once you're out of gravity, you're golden. Floatin aboot.
Dare to dream, fellow farmer!
- Registrado
- 25 de Feb, 2021
We should start sending up leg amputee astronauts. That's at least 20 pounds more science gear or fuel they could carry, for even a single-leg amputee.
- Registrado
- 10 de Dic, 2024
It'd be fantastic for preventing pressure sores.
- Registrado
- 29 de Jul, 2020
It may be that the standard is different in Canada, but I have never heard or seen it suggested that someone can't rest their head on anything after Botox for migraine. I've written up the aftercare instructions and I do remember it saying not to lie down unless necessary for a few hours afterwards, but nothing about "not resting for 6 hours." That seems super dramatic to me. You can also definitely take regular migraine meds or things like acetaminophen or ibuprofen afterwards as needed. What a weird thing to exaggerate about.
Systems All The Way Down
kiwifarms.net
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- 23 de Abr, 2022
Aster: Part 7
When we last left off, Aster was excited for her August 1st PCP, nurse, and psych appointments.
Midnight hits, and Aster decides to cancel them. She's too stressed out reblogging her donation post over and over.
But Aster also needs to spend money on a drink mix so she can drink water.
And Aster has bedbug bites in her vagina, or something.
Aster shows off her fingers that make it impossible to use her phone long-term without a ring splint (which is currently being repaired)
Aster worries that self-diagnosing with PCOS doesn't count as being intersex, even though she knows she does.
Aster wonders about Chiari and cervicocranial instability and tethered cord some more.
Aster doesn't like being faced with evidence that DID is a trend.
Ruminating over another Tumblr fight.
Aster Ubers somewhere that's a 15 minute wheelchair ride away
.
Aster tries to duct tape one of her tubes in-place
Aster wakes up for a neurology appointment and drops her urine bag onto the "cat litter floor" several times.
Aster's neurology NP tells her that her speech issues are probably psychiatric
Aster sends a message to the actual doctor
Aster plans to meet her family for lunch and then return to the doctor's so she can still use medical transport
She drops her phone in the bathroom sink
Aster gets pressured into walking around Goodwill
Air mattresses destroyed: 7
Aster joins a discord server for Jews and discovers that several of her Tumblr mutuals have already joined it
Selfie!
Aster gets ignored in the fandom server after sperging out about DID
Aster finally moves the litterbox out of the living room. It took 14 days. Apparently, she had a second dirty litter box in her closed closet the entire time.
The places the living room litterbox next to her dry groceries from weeks ago that she also never put away. This makes her upset.
Aster is still avoiding telling that one guy she doesn't want to be friends with them anymore.
Aster is working on a 300,000 word fanfiction. She also calls some of her accessfashion followers "freaks"
Aster hasn't been infusing
Aster has a meltdown over her deflated air mattress. She has nowhere to sleep, even though there's two couches in the living room. But I guess they're too bedbug-infested.
Aster thinks her roommates won't want to renew the lease
Aster is still seething about the fight. (I try to group these posts together when they're less than 8-ish hours apart, but she'll go on about stuff like this forever.)
One of her roommates really does fucking hate her
She thinks about living in a trailer at her mom's house. Apparently she previously bought a trailer for this plan, but gave up because the trailer was moldy.
Aster posts about how her blood pressure cuff thinks she's about to have a stroke
and immediately starts talking about how much salt she consumes
Aster begs for money because she forgot to schedule free transport to her cystoscopy
Her neck is subluxed
Aster wonders if she can just bus to the appointment before it gets too hot.
but she decides to just reschedule.
But gets the money.
Aster feels validated by all her medical devices
The olympics of mental gymnastics
Aster is going to try out Modafinil
Aster worries that her skirt might make her the victim of anti-occult bias
Aster waits for her cystoscopy
It's fine
Aster gets some leg bags for her pee
Aster posts a recap of the year so far
Aster drops her phone when getting out of an Uber. Her phone is her only device, so it's kind of a big deal. She asks her mom for help and doesn't get any.
One of her roommates lets her borrow their laptop, and Aster logs onto Tumblr dot com and begins complaining.
Always with the doctor's office selfies
Aster worries that urodynamics won't show any issues
Aster fluctuates between diarrhea and constipation
Aster's peehole hurts
Aster self-diagnoses with dystonia
Aster finally actually cleans the cat litter
Aster thinks her picc site is leaking pus. The nurse doesn't think so.
Aster's roommate drives her to the ER
Aster is unhappy with the wait and posts a little.
They aren't going to do a skin culture, just a blood culture.
Aster wants to kill herself.
And she gets sent home.
Aster still thinks her PICC site looks bad.
But just sleeps for 27 hours instead.
Aster decides to clean up her several week old trash pile.
Aster steals a garlic knot. This is morally OK because she couldn't help doing it for reasons.
Aster doxxes herself.
5 E Cairo Dr, Tempe, Arizona
Aster's legs "feel like sausages" because of her dwindling muscle memory of walking
She wants a second forearm crutch so she can look like a cripple, probably
Her urodynamics appointment gets rescheduled
Aster self-diagnoses with complex regional pain syndrome
The only water enhancer that Aster doesn't react to is generic strawberry watermelon from walmart.
She drives the point home by drinking non-generic raspberry lemonade water enhancer and complaining
Aster had more drink mix tucked away all along.
The coat hanger makes a reappearance in a TikTok.
Aster forgets to schedule medical transport yet again. She also loses afterpay privileges.
Aster has persecutory delusions where she imagines that nobody likes her
Aster reblogs the weirdest shit sometimes
Aster's bladder has been spasming a lot. She feels like she has to pee.
Aster disagrees with the medical definition of a fever.
Aster can't stand hanging out with people who pretend to be fictional characters online
(Hours later, Aster spawns another fictional character alter.)
Aster says she needs 3 lean cuisines for it to feel like an actual meal
Aster feels sad about her roommates not liking her
and decides it's a mixed episode
This is really weird and vaguely incestuous
Aster feels shrimp emotions
Air mattresses destroyed: 8
She finally decides to just get a real mattress. The logistics are too much to handle.
Aster decides to start fights in group chats to distract herself from the shame.
Aster's body isn't producing pee.
Aster is always right.
Aster demonstrates what hypermobility looks like on fat bodies
Aster did her urodynamics test. She says she still couldn't pee.
Her bladder is forever broken.
Aster learns what a loan is
Aster gets diagnosed with neurogenic bladder.
Aster takes her modafinil for the first time
and pays her storage bill, which was 13 days overdue.
She has now been paying for it for about 2 years.
Aster switches on Maya Kern (the woman who made her blue skirt)
Aster thinks she might be manic because she took modafinil
And she kind of cleans her room
Aster spills piss everywhere count: 1
Aster reblogs a fundraiser from an online friend with probably fake gastroparesis
Aster immediately orders taco bell and starts complaining about how much her stomach hurts
Aster forgets to schedule medical transport for the billionth time
Aster actually isn't so sure that she's been officially diagnosed with neurogenic bladder. She thinks it might just be written down because she talked about it.
Aster is still sure that her mom has gastroparesis.
The next day, Aster is still cleaning.
Aster uses a blanket to dry a floor that she mopped with bleach
Things are really turning around.
Piss everywhere count: 2
Aster breaks the dryer
Aster is still upset about being told her clearly neurological speech issues are psychiatric
She talks about how other mental health professionals and her friends dismissed her obvious autism as simple maladjustment
Luckily, one psychiatrist fell for her imitating signs of autism
Aster's toe is defs infected
Aster thinks she has a UTI
Aster wants a suprapubic catheter.
She says she's experiencing kidney pain
She seethes about her family in a boring way for a long time and then posts about wanting to kill her mom
Aster goes to the urologist. He wants her to try to self-cath.
Piss everywhere count: 3
She writes a letter.
(The day before, she successfully slept only 13 hours and woke up using an alarm.)
She also makes a TikTok that is only worth reading in-part.
She says that it is indeed quite severe neurogenic bladder. This seems to contradict the doctor's advice and her TikTok, which says that the doctor "agreed that neurogenic bladder could be a very real possibility."
Aster gets upset at an image description that someone writes for a truly hideous piece of art
Aster's concerns get dismissed as mental illness, and Aster wants to kill herself.
The next day, Aster gets good news. Her neurologist ordered a bunch of scans for her! Unfortunately, she'll have to crowdfund one or two of them.
Aster has a frustrating call with the neurologist's office.
Aster thinks she has extra wisdom teeth
Aster says she's afraid to sleep because of sexual assault
Aster's room smells bad and she assumes it's because she has covid again, because it's just like all the other times she's self-diagnosed it, despite evidence to the contrary
Aster wants to fire her urologist and keep her foley catheter longer than intended against medical advice for her own safety.
Aster's mom gets a job! omg yay!
...as her little brother's caregiver?
Aster's grandma financially abuses her 52 year old grown daughter by not giving her enough food money.
Aster decides to get her catheter replaced at the ER. She intentionally goes to an ER in a different hospital system from her urologist.
She takes a quick break to talk about how Sunny wants to fuck her
Aster asks her ER doctor not to contact her urologist
Aster wants a skin culture around her PICC
They tell her it's just itchy because it's a scar, and Aster is somehow happy with that.
Aster can probably pick up her antibiotics tomorrow.
Aster wants her EDS doctor to advocate for her. She schedules with a neuro-urology clinic.
Aster feels represented in art
She posts this picture.
Aster makes a plan for when she talks to her new urologist
Aster drops her phone in the toilet. Maybe I should've been keeping track of how many phones she goes through.
Piss everywhere count: 4
Midnight hits, and Aster decides to cancel them. She's too stressed out reblogging her donation post over and over.
But Aster also needs to spend money on a drink mix so she can drink water.
And Aster has bedbug bites in her vagina, or something.
Aster shows off her fingers that make it impossible to use her phone long-term without a ring splint (which is currently being repaired)
Aster worries that self-diagnosing with PCOS doesn't count as being intersex, even though she knows she does.
Aster wonders about Chiari and cervicocranial instability and tethered cord some more.
Aster doesn't like being faced with evidence that DID is a trend.
Ruminating over another Tumblr fight.
Aster Ubers somewhere that's a 15 minute wheelchair ride away
.
Aster tries to duct tape one of her tubes in-place
Aster wakes up for a neurology appointment and drops her urine bag onto the "cat litter floor" several times.
Aster's neurology NP tells her that her speech issues are probably psychiatric
Aster sends a message to the actual doctor
Aster plans to meet her family for lunch and then return to the doctor's so she can still use medical transport
She drops her phone in the bathroom sink
Aster gets pressured into walking around Goodwill
Air mattresses destroyed: 7
Aster joins a discord server for Jews and discovers that several of her Tumblr mutuals have already joined it
Selfie!
Aster gets ignored in the fandom server after sperging out about DID
Aster finally moves the litterbox out of the living room. It took 14 days. Apparently, she had a second dirty litter box in her closed closet the entire time.
The places the living room litterbox next to her dry groceries from weeks ago that she also never put away. This makes her upset.
Aster is still avoiding telling that one guy she doesn't want to be friends with them anymore.
Aster is working on a 300,000 word fanfiction. She also calls some of her accessfashion followers "freaks"
Aster hasn't been infusing
Aster has a meltdown over her deflated air mattress. She has nowhere to sleep, even though there's two couches in the living room. But I guess they're too bedbug-infested.
Aster thinks her roommates won't want to renew the lease
Aster is still seething about the fight. (I try to group these posts together when they're less than 8-ish hours apart, but she'll go on about stuff like this forever.)
One of her roommates really does fucking hate her
She thinks about living in a trailer at her mom's house. Apparently she previously bought a trailer for this plan, but gave up because the trailer was moldy.
Aster posts about how her blood pressure cuff thinks she's about to have a stroke
and immediately starts talking about how much salt she consumes
Aster begs for money because she forgot to schedule free transport to her cystoscopy
Her neck is subluxed
Aster wonders if she can just bus to the appointment before it gets too hot.
but she decides to just reschedule.
But gets the money.
Aster feels validated by all her medical devices
The olympics of mental gymnastics
Aster is going to try out Modafinil
Aster worries that her skirt might make her the victim of anti-occult bias
Aster waits for her cystoscopy
It's fine
Aster gets some leg bags for her pee
Aster posts a recap of the year so far
Aster drops her phone when getting out of an Uber. Her phone is her only device, so it's kind of a big deal. She asks her mom for help and doesn't get any.
One of her roommates lets her borrow their laptop, and Aster logs onto Tumblr dot com and begins complaining.
Always with the doctor's office selfies
Aster worries that urodynamics won't show any issues
Aster fluctuates between diarrhea and constipation
Aster's peehole hurts
Aster self-diagnoses with dystonia
Aster finally actually cleans the cat litter
Aster thinks her picc site is leaking pus. The nurse doesn't think so.
Aster's roommate drives her to the ER
Aster is unhappy with the wait and posts a little.
They aren't going to do a skin culture, just a blood culture.
Aster wants to kill herself.
And she gets sent home.
Aster still thinks her PICC site looks bad.
But just sleeps for 27 hours instead.
Aster decides to clean up her several week old trash pile.
Aster steals a garlic knot. This is morally OK because she couldn't help doing it for reasons.
Aster doxxes herself.
5 E Cairo Dr, Tempe, Arizona
Aster's legs "feel like sausages" because of her dwindling muscle memory of walking
She wants a second forearm crutch so she can look like a cripple, probably
Her urodynamics appointment gets rescheduled
Aster self-diagnoses with complex regional pain syndrome
The only water enhancer that Aster doesn't react to is generic strawberry watermelon from walmart.
She drives the point home by drinking non-generic raspberry lemonade water enhancer and complaining
Aster had more drink mix tucked away all along.
The coat hanger makes a reappearance in a TikTok.
Aster forgets to schedule medical transport yet again. She also loses afterpay privileges.
Aster has persecutory delusions where she imagines that nobody likes her
Aster reblogs the weirdest shit sometimes
Aster's bladder has been spasming a lot. She feels like she has to pee.
Aster disagrees with the medical definition of a fever.
Aster can't stand hanging out with people who pretend to be fictional characters online
(Hours later, Aster spawns another fictional character alter.)
Aster says she needs 3 lean cuisines for it to feel like an actual meal
Aster feels sad about her roommates not liking her
and decides it's a mixed episode
This is really weird and vaguely incestuous
Aster feels shrimp emotions
Air mattresses destroyed: 8
She finally decides to just get a real mattress. The logistics are too much to handle.
Aster decides to start fights in group chats to distract herself from the shame.
Aster's body isn't producing pee.
Aster is always right.
Aster demonstrates what hypermobility looks like on fat bodies
Aster did her urodynamics test. She says she still couldn't pee.
Her bladder is forever broken.
Aster learns what a loan is
Aster gets diagnosed with neurogenic bladder.
Aster takes her modafinil for the first time
and pays her storage bill, which was 13 days overdue.
She has now been paying for it for about 2 years.
Aster switches on Maya Kern (the woman who made her blue skirt)
Aster thinks she might be manic because she took modafinil
And she kind of cleans her room
Aster spills piss everywhere count: 1
Aster reblogs a fundraiser from an online friend with probably fake gastroparesis
Aster immediately orders taco bell and starts complaining about how much her stomach hurts
Aster forgets to schedule medical transport for the billionth time
Aster actually isn't so sure that she's been officially diagnosed with neurogenic bladder. She thinks it might just be written down because she talked about it.
Aster is still sure that her mom has gastroparesis.
The next day, Aster is still cleaning.
Aster uses a blanket to dry a floor that she mopped with bleach
Things are really turning around.
Piss everywhere count: 2
Aster breaks the dryer
Aster is still upset about being told her clearly neurological speech issues are psychiatric
She talks about how other mental health professionals and her friends dismissed her obvious autism as simple maladjustment
Luckily, one psychiatrist fell for her imitating signs of autism
Aster's toe is defs infected
Aster thinks she has a UTI
Aster wants a suprapubic catheter.
She says she's experiencing kidney pain
She seethes about her family in a boring way for a long time and then posts about wanting to kill her mom
Aster goes to the urologist. He wants her to try to self-cath.
Piss everywhere count: 3
She writes a letter.
(The day before, she successfully slept only 13 hours and woke up using an alarm.)
She also makes a TikTok that is only worth reading in-part.
She says that it is indeed quite severe neurogenic bladder. This seems to contradict the doctor's advice and her TikTok, which says that the doctor "agreed that neurogenic bladder could be a very real possibility."
Aster gets upset at an image description that someone writes for a truly hideous piece of art
Aster's concerns get dismissed as mental illness, and Aster wants to kill herself.
The next day, Aster gets good news. Her neurologist ordered a bunch of scans for her! Unfortunately, she'll have to crowdfund one or two of them.
Aster has a frustrating call with the neurologist's office.
Aster thinks she has extra wisdom teeth
Aster says she's afraid to sleep because of sexual assault
Aster's room smells bad and she assumes it's because she has covid again, because it's just like all the other times she's self-diagnosed it, despite evidence to the contrary
Aster wants to fire her urologist and keep her foley catheter longer than intended against medical advice for her own safety.
Aster's mom gets a job! omg yay!
...as her little brother's caregiver?
Aster's grandma financially abuses her 52 year old grown daughter by not giving her enough food money.
Aster decides to get her catheter replaced at the ER. She intentionally goes to an ER in a different hospital system from her urologist.
She takes a quick break to talk about how Sunny wants to fuck her
Aster asks her ER doctor not to contact her urologist
Aster wants a skin culture around her PICC
They tell her it's just itchy because it's a scar, and Aster is somehow happy with that.
Aster can probably pick up her antibiotics tomorrow.
Aster wants her EDS doctor to advocate for her. She schedules with a neuro-urology clinic.
Aster feels represented in art
She posts this picture.
Aster makes a plan for when she talks to her new urologist
Aster drops her phone in the toilet. Maybe I should've been keeping track of how many phones she goes through.
Piss everywhere count: 4
Aster starts trying to raise rent money on September 1st, the day it is due.
Aster buys a tablet for $50 to tide her over before her $60 replacement phone comes in.
Aster feels guilty about the wasted food and makes a post about how DoorDash is NOT a privilege
She makes a TikTok that's so uninteresting it's interesting. Why is this a format? Who would ever give a fuck?
Aster gets blisters on her port scar
Aster's brother spends the night
Aster needs to reschedule her EDS appointment because she forgot to schedule med transport
Sunny gets a shitton of bedbug bites so Aster thinks about trying to do something nice for her mom so she gets less mad.
Aster thinks her urologist is really bad at his job.
I forget to think about this, but she's so often complaining about her mom while she's out in public with her mom.
This shit is SO weird
Aster's mad that Sunny was sent to her house drenched in bug repellent
Piss spilled Everywhere count: 5
Aster's nurse validates her. Yayy!
Aster needs to pay off her other storage unit, now
Aster calls her pee tubing a fun stim toy
Piss everywhere count: 6
Aster's roommate tells her to change her cat's litter. So much for the parasomnia.
Aster posts an update TikTok around this time
Rescheduling again because of medical transport
Aster is faced with two equally serious problems
Aster gets money from a friend for an uber to the rheumatologist
But she still reschedules her urology appointment for another 19 days out. She wants to see a woman provider because she doesn't want to experience misogyny.
She does a bunch of mental gymnastics talking about how she's both a woman and not a woman and how she isn't actually assuming her doctor's gender, even though she totally is.
Aster looks for a new neurologist.
Aster successfully makes a bunch of appointments. The modafinil really is helping! But she might be too tired to deal with the litter box...
Aster's opinions on her doctors:
She potentially displaces her catheter
And complains about her catheter tube
New introject. This one is Michael from the Magnus Archives. He likes tacky colors and shorts.
Aster has an anxiety attack after talking about her new alter in a group chat
Aster goes to the ER
Nevermind
Aster meets her match.
In case you were wondering: the bedbugs are still very much a problem.
How Aster describes sleeping through alarms just doesn't make sense.
At her appointment
She's just given a list of providers
Aster finally changes the litter.
More terrifying artwork
Aster posts a full list of sensitivies
But she decides that she wants to eat the rest of her garlic potatoes
Aster's roommates bring up the lease.
And they don't like her rubbing alcohol habits
Aster wants to kill herself again after a routine argument with her mom
Aster "yanked too hard on her catheter by accident" and now has blood in her urine
Aster's cat pees on her bed. She's worried he ate her roommate's lillies.
Aster is jealous of how much money got donated to her cat
Aster tells her roommates to stop drinking her water bottles
And tells her roommate Eve about the lillies
She also talks to her mom.
Aster wants to kill herself.
Aster grieves having a mother that cared.
She wants to kill herself some more
Aster hopes to make a gofundme and "at least" raise rent for the next 14 months and pay off her community college debt.
Aster considers abandoning her storage units, which she thinks are probably still infested with bedbugs.
An old photo
Aster pretends it wasn't her that broke the fridge self. This is a symptom of abuse.
The roommates totally know it was her. They probably know the dryer was her, too.
Aster wants to go to the ER
Her nurse commits fatphobia
She finds out she's malnourished.
She doesn't give a lot of details as to what happened.
Later, she schedules two MRIs.
More than you know.
She self-diagnoses with pectus excavatum
Walmart employee thinks Aster is trying to steal stuff. This is clearly racial profiling.
Aster has already learned the hard way that she can't get away with stealing from this exact Walmart.
Aster shares a picture of the racist employee
Aster's friend is in the ER with sepsis and internal bleeding. Is this the friend with a suprapubic catheter?
Aster self-diagnoses with traumatic brain injury. She also mentions infantile encephalitis.
Aster hates when people are jealous of the amount of attention given to their disabled sibling.
Aster goes to a urology appointment and is mad about Princess Bubblegum being a fascist.
At the appointment.
Her new urologist agrees to give her a suprapubic catheter.
Aster's bed bags tear. She concocts a scheme.
Aster really hates her roommate and keeps blaming her for random shit.
Aster has tooth pain and thinks she has both sleep apnea and hypersomnia or narcolepsy
She adds neck braces to her amazon wishlist for some reason
Aster asks her mom to be her transport for her suprapubic catheter surgery
Aster describes her teeth in more detail
Aster works through the grief of deciding to get a suprapubic catheter. She intends it to last for the rest of her life.
Aster buys a tablet for $50 to tide her over before her $60 replacement phone comes in.
Aster feels guilty about the wasted food and makes a post about how DoorDash is NOT a privilege
She makes a TikTok that's so uninteresting it's interesting. Why is this a format? Who would ever give a fuck?
Aster gets blisters on her port scar
Aster's brother spends the night
Aster needs to reschedule her EDS appointment because she forgot to schedule med transport
Sunny gets a shitton of bedbug bites so Aster thinks about trying to do something nice for her mom so she gets less mad.
Aster thinks her urologist is really bad at his job.
I forget to think about this, but she's so often complaining about her mom while she's out in public with her mom.
This shit is SO weird
Aster's mad that Sunny was sent to her house drenched in bug repellent
Piss spilled Everywhere count: 5
Aster's nurse validates her. Yayy!
Aster needs to pay off her other storage unit, now
Aster calls her pee tubing a fun stim toy
Piss everywhere count: 6
Aster's roommate tells her to change her cat's litter. So much for the parasomnia.
Aster posts an update TikTok around this time
Rescheduling again because of medical transport
Aster is faced with two equally serious problems
Aster gets money from a friend for an uber to the rheumatologist
But she still reschedules her urology appointment for another 19 days out. She wants to see a woman provider because she doesn't want to experience misogyny.
She does a bunch of mental gymnastics talking about how she's both a woman and not a woman and how she isn't actually assuming her doctor's gender, even though she totally is.
Aster looks for a new neurologist.
Aster successfully makes a bunch of appointments. The modafinil really is helping! But she might be too tired to deal with the litter box...
Aster's opinions on her doctors:
She potentially displaces her catheter
And complains about her catheter tube
New introject. This one is Michael from the Magnus Archives. He likes tacky colors and shorts.
Aster has an anxiety attack after talking about her new alter in a group chat
Aster goes to the ER
Nevermind
Aster meets her match.
In case you were wondering: the bedbugs are still very much a problem.
How Aster describes sleeping through alarms just doesn't make sense.
At her appointment
She's just given a list of providers
Aster finally changes the litter.
More terrifying artwork
Aster posts a full list of sensitivies
But she decides that she wants to eat the rest of her garlic potatoes
Aster's roommates bring up the lease.
And they don't like her rubbing alcohol habits
Aster wants to kill herself again after a routine argument with her mom
Aster "yanked too hard on her catheter by accident" and now has blood in her urine
Aster's cat pees on her bed. She's worried he ate her roommate's lillies.
Aster is jealous of how much money got donated to her cat
Aster tells her roommates to stop drinking her water bottles
And tells her roommate Eve about the lillies
She also talks to her mom.
Aster wants to kill herself.
Aster grieves having a mother that cared.
She wants to kill herself some more
Aster hopes to make a gofundme and "at least" raise rent for the next 14 months and pay off her community college debt.
Aster considers abandoning her storage units, which she thinks are probably still infested with bedbugs.
An old photo
Aster pretends it wasn't her that broke the fridge self. This is a symptom of abuse.
The roommates totally know it was her. They probably know the dryer was her, too.
Aster wants to go to the ER
Her nurse commits fatphobia
She finds out she's malnourished.
She doesn't give a lot of details as to what happened.
Later, she schedules two MRIs.
More than you know.
She self-diagnoses with pectus excavatum
Walmart employee thinks Aster is trying to steal stuff. This is clearly racial profiling.
Aster has already learned the hard way that she can't get away with stealing from this exact Walmart.
Aster shares a picture of the racist employee
Aster's friend is in the ER with sepsis and internal bleeding. Is this the friend with a suprapubic catheter?
Aster self-diagnoses with traumatic brain injury. She also mentions infantile encephalitis.
Aster hates when people are jealous of the amount of attention given to their disabled sibling.
Aster goes to a urology appointment and is mad about Princess Bubblegum being a fascist.
At the appointment.
Her new urologist agrees to give her a suprapubic catheter.
Aster's bed bags tear. She concocts a scheme.
Aster really hates her roommate and keeps blaming her for random shit.
Aster has tooth pain and thinks she has both sleep apnea and hypersomnia or narcolepsy
She adds neck braces to her amazon wishlist for some reason
Aster asks her mom to be her transport for her suprapubic catheter surgery
Aster describes her teeth in more detail
Aster works through the grief of deciding to get a suprapubic catheter. She intends it to last for the rest of her life.
Aster wakes up and wants to kill nonblack people
Aster gets her MRIs
Aster disagrees with the PTSD diagnosis criteria
Aster realizes the flaw in her Covid self-diagnosis logic
Aster's MRIs come back mostly normal
But it showed nothing because the tech screwed up
Aster wants yet another new neurologist. This time, she's going to go to an EDS-friendly one.
Aster is supposed to get her SPC in just 5 days. She still doesn't have transport.
Aster's roommates are all leaving her.
Aster gets a job offer. She would get paid a small amount to be a live-in nanny.
She declines. She feels like declining might be the worst decision of her life.
Someone notices Aster
Aster's nurse judges her for not trying to self-cath. The nurse seems to be intentionally trying to make Aster feel like a lazy piece of shit.
Aster considers spending an extra $200-300 per month so she can have a studio apartment.
Aster narrowly avoiding being a cookie monster pajama patient.
Aster is prepared to miss the SPC surgery and blame the nurse for it.
Surgery.
It is time.
Aster wants more pain meds.
It really fucking hurts.
The day after. Still hurting. She's not happy with the placement or with recovery.
Aster begs for money for weed
Two days after surgery, Aster can't handle the pain.
Aster gets invalidated
Aster wants to kill herself
Aster goes to the dispensary with an overnight catheter bag
Aster can't have ibuprofen because of former suicide attempt with them
Piss spilled everywhere count: 7
Aster wants to kill herself
Aster's wound looks bad. She ordered that "Don't Be Ableist" shirt from before
Aster decides to go to the ER
They say everything is fine.
Aster is shocked to learn that a Jewish content creator is a zionist
She's also shocked to learn that catheter care is a lot of work
Aster spills her smoothie and lies about it so she can get a refund
Using the power of her freshly-installed suprapubic catheter, Aster sleeps for 32 hours
Aster is bleeding somewhere
Aster goes to sleep again. This time for 35 hours
She gets sent some antibiotics.
Aster rips her stitches
And she goes to the ER again, this time with her brand new shirt.
I never thought about this before, but every time Aster gets on the bus in her scooter, everyone on the bus and everyone stuck in traffic behind the bus has to wait for the entire wheelchair boarding process.
Aster has a high WBC
Doctor thinks it's a UTI
Aster has a latte, despite claiming at points that she's allergic to coffee
Aster already feels better
Aster runs out of water enhancer. She switches to the one soda she doesn't react to.
She reacts to the antibiotics.
She wants to go back to the ER
Aster's mom offers to rent a room at her house to Aster. Aster is offended by the notion
The doctor thinks her SPC looks fine again. They switch her antibiotic.
Aster finishes making her 14-months-of-rent gofundme but gets cold feet about some of the things she wrote
Aster has an antibiotic resistant infection.
Aster's roommate asks her about moving plans. Aster presumably ignores it, and is then surprised by notice of lease-nonrenewal being sent to her landlord.
It has now been two weeks since surgery
Aster is now both shitting and pissing blood
Aster goes to the ER for the 4th time that week
Aster gets Panda Express on her way to the ER
Aster isn't happy but she gets another antibiotic shot. They say that the bacteria is probably colonization
The doctors do not believe Aster is allergic to the things she says she is.
Aster wants to kill herself
Aster tells the staff she's having a reaction. They say it's just anxiety.
Aster thinks the blood in her stool is from the antibiotics. She's probably right.
Aster's irresponsible EDS-friendly urologist who Believes Her Patients reschedules aster due to a family emergency. Aster is upset.
The next day, Aster does her catheter care. It takes 30 minutes.
The urologist's office gives her doxycycline.
Aster's picc line is blocked and she considers going to the ER again.
Aster gets adhesive burns
Aster spills superbug-infected pee and it soaks into her picc dressing.
Piss spilled everywhere count: 8
Aster releases her anonymous gofundme
Aster's catheter tubing is acting weird, and it makes Aster almost piss herself the normal way. But her bladder is paralyzed and she can't pee at all.
Aster updates her accessfashion followers, probably to indirectly promote her gofundme
Aster resigns herself to living with her mom again.
The doxycycline is working
Aster's roommate is talking shit. Aster's friend comforts her about the hygiene-based discrimination she's experiencing.
Aster's roommate points out there there's blood in the toilet.
Aster says that there is no blood on the toilet, but apologizes anyways (and tries to make her roommate feel guilty for saying anything)
Actually, there IS blood, but it's definitely not her blood from her fresh bladder mutilation.
Aster's roommate is fake
Aster brushes her teeth for the first time in two and a half weeks.
Aster makes up something else to feel upset about
Aster's roommate responds. Aster calls her a two-faced bitch.
Aster feels very special for being Sami but worries that that doesn't give her indigenous person clout, since they're not indigenous to the hemisphere she lives in.
Aster would rather infect an airbnb with bugs than reinfect her mom's house.
Aster's pee looks bad again.
Aster gets her MRIs
Aster disagrees with the PTSD diagnosis criteria
Aster realizes the flaw in her Covid self-diagnosis logic
Aster's MRIs come back mostly normal
But it showed nothing because the tech screwed up
Aster wants yet another new neurologist. This time, she's going to go to an EDS-friendly one.
Aster is supposed to get her SPC in just 5 days. She still doesn't have transport.
Aster's roommates are all leaving her.
Aster gets a job offer. She would get paid a small amount to be a live-in nanny.
She declines. She feels like declining might be the worst decision of her life.
Someone notices Aster
Aster's nurse judges her for not trying to self-cath. The nurse seems to be intentionally trying to make Aster feel like a lazy piece of shit.
Aster considers spending an extra $200-300 per month so she can have a studio apartment.
Aster narrowly avoiding being a cookie monster pajama patient.
Aster is prepared to miss the SPC surgery and blame the nurse for it.
Surgery.
It is time.
Aster wants more pain meds.
It really fucking hurts.
The day after. Still hurting. She's not happy with the placement or with recovery.
Aster begs for money for weed
Two days after surgery, Aster can't handle the pain.
Aster gets invalidated
Aster wants to kill herself
Aster goes to the dispensary with an overnight catheter bag
Aster can't have ibuprofen because of former suicide attempt with them
Piss spilled everywhere count: 7
Aster wants to kill herself
Aster's wound looks bad. She ordered that "Don't Be Ableist" shirt from before
Aster decides to go to the ER
They say everything is fine.
Aster is shocked to learn that a Jewish content creator is a zionist
She's also shocked to learn that catheter care is a lot of work
Aster spills her smoothie and lies about it so she can get a refund
Using the power of her freshly-installed suprapubic catheter, Aster sleeps for 32 hours
Aster is bleeding somewhere
Aster goes to sleep again. This time for 35 hours
She gets sent some antibiotics.
Aster rips her stitches
And she goes to the ER again, this time with her brand new shirt.
I never thought about this before, but every time Aster gets on the bus in her scooter, everyone on the bus and everyone stuck in traffic behind the bus has to wait for the entire wheelchair boarding process.
Aster has a high WBC
Doctor thinks it's a UTI
Aster has a latte, despite claiming at points that she's allergic to coffee
Aster already feels better
Aster runs out of water enhancer. She switches to the one soda she doesn't react to.
She reacts to the antibiotics.
She wants to go back to the ER
Aster's mom offers to rent a room at her house to Aster. Aster is offended by the notion
The doctor thinks her SPC looks fine again. They switch her antibiotic.
Aster finishes making her 14-months-of-rent gofundme but gets cold feet about some of the things she wrote
Aster has an antibiotic resistant infection.
Aster's roommate asks her about moving plans. Aster presumably ignores it, and is then surprised by notice of lease-nonrenewal being sent to her landlord.
It has now been two weeks since surgery
Aster is now both shitting and pissing blood
Aster goes to the ER for the 4th time that week
Aster gets Panda Express on her way to the ER
Aster isn't happy but she gets another antibiotic shot. They say that the bacteria is probably colonization
The doctors do not believe Aster is allergic to the things she says she is.
Aster wants to kill herself
Aster tells the staff she's having a reaction. They say it's just anxiety.
Aster thinks the blood in her stool is from the antibiotics. She's probably right.
Aster's irresponsible EDS-friendly urologist who Believes Her Patients reschedules aster due to a family emergency. Aster is upset.
The next day, Aster does her catheter care. It takes 30 minutes.
The urologist's office gives her doxycycline.
Aster's picc line is blocked and she considers going to the ER again.
Aster gets adhesive burns
Aster spills superbug-infected pee and it soaks into her picc dressing.
Piss spilled everywhere count: 8
Aster releases her anonymous gofundme
Aster's catheter tubing is acting weird, and it makes Aster almost piss herself the normal way. But her bladder is paralyzed and she can't pee at all.
Aster updates her accessfashion followers, probably to indirectly promote her gofundme
Aster resigns herself to living with her mom again.
The doxycycline is working
Aster's roommate is talking shit. Aster's friend comforts her about the hygiene-based discrimination she's experiencing.
Aster's roommate points out there there's blood in the toilet.
Aster says that there is no blood on the toilet, but apologizes anyways (and tries to make her roommate feel guilty for saying anything)
Actually, there IS blood, but it's definitely not her blood from her fresh bladder mutilation.
Aster's roommate is fake
Aster brushes her teeth for the first time in two and a half weeks.
Aster makes up something else to feel upset about
Aster's roommate responds. Aster calls her a two-faced bitch.
Aster feels very special for being Sami but worries that that doesn't give her indigenous person clout, since they're not indigenous to the hemisphere she lives in.
Aster would rather infect an airbnb with bugs than reinfect her mom's house.
Aster's pee looks bad again.
Air mattresses destroyed: 8
Piss spilled everywhere count: 8
Phones destroyed, Tumblr fights, medical transport not arranged, ER visits, and suicide threats: countless
Aster has a hard time adjusting to life with a catheter. She especially seems to spill piss everywhere when she uses leg bags.
Aster's relationship with her brother starts seeming a little weird.
She claims to be diagnosed with neurogenic bladder, but there's reason to doubt this diagnosis.
Two neurologists and her urologist think she's mentally ill. (This excludes specialists that are consulted while she's in the ER, who also tend to think Aster is mentally ill.) Aster decides to look for a second opinion and finds an EDS-friendly urologist.
Aster gets an SPC placed about a week after meeting with her EDS-friendly urologist.
She immediately starts incubating a superbug, just like her friend, who also a neurogenic bladder and suprapubic catheter, and who inspired Aster to look into these treatments.
Piss spilled everywhere count: 8
Phones destroyed, Tumblr fights, medical transport not arranged, ER visits, and suicide threats: countless
Aster has a hard time adjusting to life with a catheter. She especially seems to spill piss everywhere when she uses leg bags.
Aster's relationship with her brother starts seeming a little weird.
She claims to be diagnosed with neurogenic bladder, but there's reason to doubt this diagnosis.
Two neurologists and her urologist think she's mentally ill. (This excludes specialists that are consulted while she's in the ER, who also tend to think Aster is mentally ill.) Aster decides to look for a second opinion and finds an EDS-friendly urologist.
Aster gets an SPC placed about a week after meeting with her EDS-friendly urologist.
She immediately starts incubating a superbug, just like her friend, who also a neurogenic bladder and suprapubic catheter, and who inspired Aster to look into these treatments.
Edit: Accidentally submitted early. Finishing this up.
Edit: Done.
Archivos adjuntos
Última edición:
FreeFlirty
kiwifarms.net
- Registrado
- 3 de Mar, 2026
Yes!! Just finished the audiobook and was actually planning to make a post almost identical to this. Nailed it. Just a girl with some real health issues who wanted an excuse to lean into the part she likes about being sick, ie. not having to do anything you don't feel like doing. Many such cases. What is interesting is that she almost has the opposite of failure to launch. She launched a very impressive career at a much younger age than most people who have the same trajectory. But rather than using disability as an excuse never to do anything interesting, it seems that she got very burned out and used disability as an excuse to step back down and not do anything further.
It's quite obvious later in the book as she gets older and gets sober, and can't blame her being barred out all the time on EDS, that she's not really as permanently sick as she wants to believe she is. And it's hilarious that she openly admits her husband and mother tell her it's unhealthy to identify so much with being a sick girl, but she's like "well I'm gonna do it anyway because I think it's punk rock." Lol okay, Lena Dunham. Go for it.
But all in all, fascinating how similar her munching trajectory is to these other girls. And also, like many of them, she had the means to back up her bullshit. When a random fan told her she probably had hEDS she was able to travel to some hack "researcher" and get that diagnosis. When she wanted more surgeries for her endometriosis than were advisable, she obviously had the money and access to "the best doctors" to get them.
I believe she lives on Vancouver Island, not in Vancouver the city. Vancouver Island is a very large island, about an hour and a half (by ferry) West of Vancouver. She definitely went to college in Victoria, which is on Vancouver Island. And it's hard to tell from her photos, but it looks like she may live in the outskirts of Victoria now. There are a lot of rural areas with farmland just outside the city. She may also live further North, or somewhere on the mainland in the Fraser Valley, but it looks more like the island from her photos. I'm going to look at her page and see if I can tell. Great find.
munchmeat2015
kiwifarms.net
- Registrado
- 5 de Jul, 2021
Thank you for clarifying! I would be very interested in anything you are able to find.
While Googling for her socials earlier I also happened upon this recent Reddit post where people were discussing her antics
Then some accounts that are a few hours old and owned by Julia's Friends (totally not Julia) jumped in to defend her honor
- Registrado
- 18 de Mayo, 2025
"She's a sweet grandma in her 20s lol' omfg she's Rose 2.0 and I hate it so fucking badly I want to claw out my own eyes.
Of course the bonnets are a baby thing. Fuck, lady.
Of course the bonnets are a baby thing. Fuck, lady.
- Registrado
- 25 de Feb, 2021
I hope she's also explaining to her physicians how Tylenol is really an NSAID.Two days after surgery, Aster can't handle the pain.
It's pretty funny that someone who regularly sleeps for 30 hours has an intractable bedbug infestation.
- Registrado
- 8 de Sep, 2025
Very fucking good. Certifications for regular sign language have existed since ever and you could even get masters in this even in Poland just like you get masters in English or Polish. I gotta check this. Why isn't it called deafblind interpreter? Hm In sign language you say "interpreter" and not "translator" mostly because sign language translation is done in real time most of the time though sometimes they translate children books or something into a video of sign language.
failed mist
kiwifarms.net
- Registrado
- 25 de Ago, 2024
Bedbugs can do that to you. Getting a bunch of bites can make you feel sleepy and unmotivated and unwell and stuck in an endless nonspecific malaise. Which then motivates you to stay in bed. Where you can get bitten by more bedbugs.
You don’t fuck around with bedbugs.
- Registrado
- 24 de Sep, 2025
An interpreter facilitates communication between languages. An intervenor also does the job of interpreting but they're also the "eyes" and "ears" of a deafblind person so that they can interact/react with the outside world and vice-versa, if that makes sense. On top of interpreting they'd also do things like help them access information, navigate the environment, narrate what's happening around them, etc. For example someone with normal sight and/or hearing would have a comparatively easier time to strike up a conversation with a person next to them, compared to a deafblind person. An intervenor in this situation can let the other person know that the deafblind person wants to talk, and that the intervenor will do the interpreting.
- Registrado
- 23 de Abr, 2019
OT, but tactile sign language and protactile are different.
I’ve done training in both, and there’s significant differences. Tactile sign language is what you’d assume, the deafblind person has their hand/hands over the signer, then signs back. It’s not always that affective and a lot of context e.g. spacial grammar, descriptions, facial expressions and reactions, etc. are lost. Protactile is hand-on-hand signing like tactile, but there is an established, standard set of tactile movements/input the signer and reciever make on the opposite person’s hand, arm, and leg to show different things. For example, if you’re describing where the bathroom is, you would create a tactile ‘map’ on their palm, drawing with your finger to show you walk up a hallway a short way and then turn left, then a small scratching movement to show the door where the bathroom is. If the hallway is long, then you’d extend the map up their forearm. Also you as the reciever (listener) provide consistent feedback to show you are listening through tapping, scratching, and patting the signer. But different movements and locations depending on how you are responding, and there are very specific okay and not okay locations and movements so you’re not crossing boundaries. Protactile example
Última edición por un moderador:
- Registrado
- 18 de Mayo, 2025
Dear God I just got through Aster's last half decade. That one provider is doing a lot of damage - the one giving her whatever toys she asks for, I mean. That's a risky game, especially for the ones to whom you give external access to internal processes. They will always, always sabotage them. The list of failures is so long we have over 1200 pages of them documented here. Somebody really ought to publish a paper on some of these outcomes. They are shockingly predictable.
Also, WHERE is Aster's money coming from? $500 a month to mom, she isn't working and she doesn't get social security? Yet she could pay out of pocket for an MRI? Was there a successful GFM at some point? I'm so confused about the financial details...
Not even going to mention the weird relationship with the brother thing. I hate it.
Also, WHERE is Aster's money coming from? $500 a month to mom, she isn't working and she doesn't get social security? Yet she could pay out of pocket for an MRI? Was there a successful GFM at some point? I'm so confused about the financial details...
Not even going to mention the weird relationship with the brother thing. I hate it.
FreeFlirty
kiwifarms.net
- Registrado
- 3 de Mar, 2026
So I wasn't able to find anything indicating exactly where she lives, but I do, God rest my soul, have several mutuals with her. And it would almost have to be somewhere on Vancouver Island, presumably Greater Victoria: Saanichton, Sooke, Sydney, or Metchosin. Her constant ferry pictures also suggest she lives on the island. If she lived on the mainland for it to make any sense geographically, she'd be about 2 hours from the coast.
I regret to report that this behaviour is shockingly typical for a UVic grad living out a bizarre farm-based fever dream. It's a weird city.
Or she may actually live on one of the Gulf Islands. She would be right at home there. That's the Canadian portion of the San Juan archipelago in Washington. Lots of weird hippies in freaky gnome bonnets. She's amongst her people, whatever she's doing.
- Registrado
- 8 de Sep, 2013
God forbid she have a hobby (gnome impersonation)
- Registrado
- 6 de Ene, 2019
A is the right answer?? They aren’t breathing!
- Registrado
- 20 de Ene, 2022
Well, ackshually, you're more suited to be an astronaut than Alex is suited to be a clinician- you're not gonna use your legs at zero gravity anyway